"Secrecy is the freedom tyrants dream of"

Unless we, as caregivers of a person with FASD, as those who live with FASD, as those who work with clients who are affected, speak out loud and often on the topic, unless we share the diagnosis, the trauma, the crises, no-one will hear, no-one will understand, no-one will help. I believe honesty and openness are vital to improving the lives of those we love and are committed to serving.

The view is worth the effort!

Friday, April 9, 2010

Select Committee on Mental Health and Addictions (Ontario)

I reported to the Select Committee on mental Health and Addictions vis-a-vis FASD, along with a colleague back in September and the Committee has now completed its Interim Report. This report is available on the Legislative Assembly web site at: http://www.ontla.on.ca/committee-proceedings/committee-reports/files_pdf/SCMHA-InterimReport-March2010.pdf

Pages of particular interest are 10 (First Nations, Inuit and Metis Peoples), and 31 (specific illnesses). Some snippets:

"Witnesses noted that early diagnosis is key, as is the case with most conditions. However, FASD diagnoses are complex and typically require a multi-disciplinary team. Thus, FASD is frequently misdiagnosed as attention deficit hyperactivity disorder (ADHD) or autism, and treated incorrectly, if at all, or simply dismissed as bad behaviour.

"Witnesses advocated for proper diagnostic services, case management, special education and developmental programs, addictions counselling, assisted living options, skills training, the provision of structured environments, and respite care for families.

"It was also recommended that a single ministry take the lead for this condition and provide a targeted pool of resources. At present, FASD has "orphan" status, as no ministry assumes responsibility for it, and it lacks as OHIP billing code. Finally, care for individuals with FASD should be incorporated into a strategy for those with concurrent disorders, and a prevention campaign sensitive to the needs of particular communities should be developed."

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